The Children’s Heart Foundation
Research, parental support and information for families of children with congenital heart disease. The Children’s Heart Foundation has a great pdf book that can be downloaded or read online. It is titled, “It’s My Heart” and is a must read for all our CHD parents. It describes heart defects in an easy to understand way.
The Congenital Heart Information Network
This is a great resource area for reading on different types of CHD; they also have listings for other support groups and networks.
The CHD Quilt Project
Mended Little Hearts
Nationwide support and advocacy group for families and adults with pediatric heart disease.
What Did You Say?
Congenital heart disease medical terminology.
Congenital Heart Bookstore
Collection of books pertinent to families facing congenital heart disease.
Saving Little Hearts
Provides care packages for children undergoing open heart surgery.
Mended Hearts of Suffolk
Hypoplastic Right Hearts
Online message board forum and information portal for families who have any kind of hypoplastic right heart syndrome diagnosis.
Hypoplastic Left Hearts
Information portal for families with diagnosis of hypoplastic left heart syndrome.
Provides financial assistance for families with children with congenital heart disease.
Jamie’s Heart Foundation
Financial assistance for CHD related expenses for families.